How We Got Here Part 1

April 12, 2008

I’ve been thinking about blogging for a long time but felt I had nothing truly significant to say. All of my friends have blogs and there is just something in me that wants to rebel against all things everyone else is doing. It was just recently that we’ve taken some major steps in healing our son and I feel that others need to know. Especially those walking along the same road we are.

Here’s a brief snapshot of our lives over the last year: Gavin was about two and a half when we decided he needed to be evaluated for speech therapy. He wasn’t talking like he should and he had some other funny “quirks” (ie: carrying an armful of toys around ALL DAY, opening and closing doors, spinning objects). We contacted the public school system and was directed to the Early Access Education Program. Over the next several months, Gavin was visited weekly at our home by a speech pathologist and a developmental teacher. Both women were wonderful and it was always the highlight of his week.

About three months of therapy went by and it was mentioned that Gav displayed some “autistic characteristics” and should be formally tested. Needless to say, I was shell-shocked. My perfect little baby DID NOT have anything wrong with him! He was just a boy and boys always develop slower, right? THE WORD conjured up images of Dustin Hoffman in Rain Man.

Gavin was formally tested in September of last year and was found to have Pervasive Developmental Disorder-Not Otherwise Specified (or PDD as I will now refer to it). He didn’t score high enough on the test to be considered autistic (one test you want your child to score low on!) , but he still scored high in some areas, enough to warrant this diagnosis. (PDD is classified under the autism umbrella).

In January of this year, Gavin began school through the Early Access Program and LOVES it. Mommy had a hard time letting him go, but it’s been so good for him to have the social interaction in a classroom setting. He has specially trained teachers and lots of activities that I would not have been able to replicate. Heck, they get to go on skywalks almost every day!

We have already seen vast improvements in his speech and his eye contact. He loves his teachers and always talks about his friend Toby (whom the entire class refers to as Tobyoby) :)

3 Responses to “How We Got Here Part 1”

  1. Elizabeth said

    hey em, i’m so glad that you wrote this. i had no clue. it helps for me to be able to keep updated on how your family is, so keep it up. and em, keep your head up, this is something that only God can control, so keep following His lead and I promise you, He will bless you in time.
    Love you!
    Elizabeth Janes

  2. Jill Jensen (Ferris) said

    Emily,
    Thank you so much for posting this for all to see so we can all lift Gavin up in prayer. What you are doing for him is so amazing. He is so blessed to have parents like you who are willing to to anything to help him recover. I work with an autistic child every day, and he has come leaps and bounds. It is so wonderful to see that with the right care, and being surrounded by the right people, an autistic child really can change. You are awesome, and I just want you to know that I will be praying for you all. Take care, and God bless,
    Jill

  3. Jody said

    Em and Josh-
    I’m so glad you are doing this blog, and everything else that you are doing for Gavin. The new diet sounds hopeful. I appreciate knowing how life is going for you all, and this is important informmation for so many. God bless you all. Love, Jody

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