October 26, 2009
This trailer was sent to me (thanks Jules!) and it seems to be a beautiful picture of just how far one family goes to try to heal their autistic son.
At one point in this clip the dad even says that they decided to do something crazy-they went halfway around the world in search of a miracle. Often times that’s exactly how I feel. We came home from the Autism Institute and decided to pull Gavin out of school and instead, stick him in a room for about 20 hours a week. Crazy. But you know what? This crazy idea that two kooky hippies had in the 70’s is WORKING. It is UNBELIEVABLE the transformation we’ve seen in Gavin this past month. He has SO much more independent thought and he’s now talking non-stop! He’s looping a lot more (back and forth conversation) and has been so much better at answering questions. IT’S ONLY BEEN A MONTH and I CANNOT wait to see what he will be like in 2 months!!!
October 10, 2009
A lot has been going on in the world of autism these days.
- President Obama has recently signed a new plan for $1 billion to go to autism research over the next 8 years. That’s the largest grant in American history to date!
- A new study reported this month in Neurotoxicology found developmental delays and brain damage in baby monkeys given thimerasol (mercury preservative). Thimerasol is found in the flu vaccine (don’t get one!), the new H1N1 vaccine, and 5 childhood vaccines. The CDC removed all thimerasol from other vaccines starting in 1991, but it still remains in 5 today.
- A new study out October 5th (ironically Gav’s birthday) now reports that 1 in 91 children are diagnosed with autism-1 in every 58 boys. Wow.
On the home front:
- We just completed our 2nd week of our Son-Rise program and it’s going really well! We logged about 14 hours the first week and 17 hours this past week. We have amazing volunteers and Gavin has really enjoyed his time with each of them. After spending time in the playroom, we’ve noticed a signficant increase in language and eye contact. Yay! (His speech therapist even commented on the increase after Gav’s 2nd day in the playroom!)
- Gavin also started occupational therapy this past week. He spends 45 minutes on Tuesdays with Miss Becky, and then on Thursdays his speech and OT times are combined and his therapists “co-treat” him at the same time. (Needless to say, he’s exhausted when he’s done).
- He starts physical therapy on the 19th as well as art therapy! I’m so excited about art. There’s a sweet girl at our church who will be coming to our house twice a month to do art with both boys.This will be a great opportunity for him (and Liam!) to work on fine motor skills, listening, following directions, and attention span. Shoud be really fun!
- I’m also in the process of researching music therapy. The kid could listen to music ALL day if I let him. He has perfect pitch, has an amazing memory for music, and I think he would just plain love it. His new favorite thing is playing notes on the piano and listening to the different sounds they make.
While we have an extremely busy schedule with playroom time and therapy, we’ve actually slowed down quite a bit. We have to be home more while Gav is doing his thing with our volunteers, so while it seems busy on the calendar, it’s been nice to stay home and be more calm. It’s much easier to say no to things that steal our time and there’s no rushing around to get him to and from school and clear out to ChildServe after school. So far so good!
October 6, 2009
Last weekend we took the boys to Boone ride Thomas THE Train!!! We didn’t tell them we were going until we were in the car on the way (they have trouble eating, sleeping……standing still when something exciting is about to happen).
Our train wasn’t scheduled to depart until 10am and we were told to arrive at least an hour before. Fortunately they had fun stuff for the kids to do while we waited, but the boys ONLY wanted to ride Thomas.
The guys with Sir Topham Hatt. Liam was not having any of that. Gav thought he was way cool though!
There’s a smile finally!
The ride was only 25 minutes (we all thought it could have been longer) but it was still tons of fun! (Only problem is, now the boys think Thomas lives at that “park” and they keep asking to go back to where Thomas lives. Maybe next year!)
October 5, 2009
Gavin Walker turned 5 today. Wow. Every time I think about that I nearly burst into tears. Before kids you always hear about how fast the time goes, yada yada yada, but until you have children of your own do you fully understand how fast time REALLY does go (and it keeps going faster).
Seriously, it was just yesterday that he was a chubby little peanut sleeping peacefully on my chest (he never was a good napper unless I held him) and now he’s all boy-all LOUD, WONDERFUL, SWEET, CARING, FUNNY boy.
Happy Birthday G-Love! Mommy loves you more than you will ever know. Now please stop getting bigger and stay my little bubs.